Post by uniQure
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The Opening Ceremony of today's #HDSAConvention included an update from uniQure following our recent AMT-130 regulatory news. uniQure Patient Advocacy's Payal Venugopal outlined next steps and expressed our sincere gratitude to the community: "We want to say a heartfelt thank you to the #HuntingtonsDisease community. Patients, families, and advocacy partners are truly at the center of this work. Your willingness to share your experiences has helped ensure the patient voice is heard... We also recognize the critical role of clinical trial participation and advocacy. Efforts like Enroll-HD, participation in research, and ongoing advocacy have been essential in advancing understanding of HD. Every contribution has helped drive meaningful progress and key milestones... A big thank you to HDSA for your continued advocacy efforts including the recent meetings with lawmakers and shaping the next advocacy patient leaders, many of whom are in this room. To the HD Coalition leaders, advances in this field are possible because of this partnership. Your collaboration is helping move science forward and bringing us closer to new treatment options."