Post by Ultragenyx

Behind every diagnosis of glycogen storage disease type Ia (#GSDIa) is a person, a family, and a daily reality shaped by constant vigilance. Strict dietary management, fears of life-threatening low blood sugar, and ongoing health challenges can take a profound toll on quality of life. Yet families continue to show strength, resilience, and hope every day. As Katie Ward, caregiver and vice president at ASSOCIATION FOR GLYCOGEN STORAGE DISEASE, shares, that reality places an immense and often unseen pressure on caregivers, where even a small misstep can have serious consequences. #GSD1A #RareButReal #glycogenstoragedisease

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