Post by Ultragenyx

Name: ⏰ Every 2 to 6 hours. Around the clock. For people living with glycogen storage disease type Ia (#G
Uploaded: 2026-06-10T13:40:49.780Z
Channel: Ultragenyx
Description: ⏰ Every 2 to 6 hours. Around the clock. For people living with glycogen storage disease type Ia (#GSDIa), survival depends on strict nutrition management; most typically raw cornstarch taken every 2

114,243 followers

⏰ Every 2 to 6 hours. Around the clock. For people living with glycogen storage disease type Ia (#GSDIa), survival depends on strict nutrition management; most typically raw cornstarch taken every 2 to 6 hours, day and night. Missing just one dose can trigger a dangerous drop in blood sugar, turning nights into a series of alarms, worry, and sleepless vigilance. Even with perfect adherence, the risk of serious long-term complications remains. Behind every schedule is a family. Behind every alarm, a person. ✨ We are committed to shining a light on this relentless daily burden. #GSD1A #RareButReal #glycogenstoragedisease

Video Content