Post by Ultragenyx

That's a wrap on the 2026 AGSD Conference! We were honored to join the ASSOCIATION FOR GLYCOGEN STORAGE DISEASE for their annual gathering to connect with patients, caregivers, and medical professionals. In addition to listening and learning from the community, we had the opportunity to present two projects developed in close partnership with the GSDIa community and other rare disease advocates: ✅ Global patient advocacy and health outcomes perspectives on the impacts of GSDIa ✅ Understanding experiences with AAV testing for clinical trial eligibility in rare diseases: perspectives from patient advocates and treating physicians Thank you to AGSD for bringing the community together and fostering meaningful conversations, insights, and connections that help drive progress in rare disease innovation forward. #AGSD2026 #GSD1a