Post by Sprout Health Solutions

We’re really pleased to share that research that Sprout Health Solutions led in collaboration with Takeda has been published in BMC Health Services Research. 📑 Read the full publication here: https://lnkd.in/e6f3ETrT This international qualitative study explores how people living with mucopolysaccharidosis II (Hunter syndrome) experience the transition from paediatric to adult care, an increasingly important milestone as advances in treatment mean more patients are living longer. The findings highlight just how critical well-coordinated, patient-centred transition pathways are: not just to ensure continuity of care, but to support patients and families during what can be a complex and uncertain period. 🌱 At Sprout Health Solutions, we’re passionate about bringing the patient voice into moments like these, where thoughtful design of services can make a real difference to lived experience. 🎉 A big thank you to all collaborators and authors involved in making this work happen Karolina M Stepien; Lade Ayodele; Roberto Giugliani; Christina Jackson; Laura Meade PhD CPsychol NBC-HWC; Maurizio Scarpa; Christina Lampe; Jennifer Audi; Siddharth Jain, M.D.; Mireia del Toro #PatientExperience #RareDisease #TransitionofCare #SproutHealthSolutions