Post by Sobi - Swedish Orphan Biovitrum AB (publ)

153,574 followers

An example of how we grow and move forward together. Since its launch, Unite4Rare has helped shape how we partner with the patient and caregiver community - grounded in four pillars: Connect, Nurture, Collaborate and Innovate. Over the past year, we’ve tracked progress through clear KPIs across each pillar, giving us a more consistent view of impact and where our efforts are making the biggest difference. We’ve worked with the patient community and internal teams to pressure-test what’s working and what needs to evolve. That feedback has helped us refine the KPIs so they better reflect how work happens in practice. Next, we’re introducing a new digital platform to support data collection and reporting that will bringing a clearer, more cohesive view of our progress. Unite4Rare was always meant to evolve, because meaningful partnerships don’t stand still; they grow and move forward together. Learn more about Unite4Rare and our progress here: https://lnkd.in/dbkhfKYZ #Sobi #RareDisease #Unite4Rare #PatientEngagement

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