Post by Octapharma

A sudden illness. A complex diagnosis. And a father’s determination to find answers. When Neil Gilson’s son was diagnosed with PANS/PANDAS, his family faced uncertainty, limited awareness, and a challenging path to care. Rather than stepping back, Neil turned that experience into action. He is now taking on a series of extreme open-water swims across Europe’s lakes to raise awareness and support other families navigating similar journeys. Stories like Neil’s highlight why increasing understanding of complex conditions matters. Not just in science, but in the lives of patients and their families. Raising awareness is a crucial step towards earlier recognition, better care, and stronger support networks for those affected. Take a moment to watch Neil’s story!

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