Post by FSHD Europe/ FSHD European Trial Network

🎬 Three days. Shared voices. A common path forward. 🔵🟠 Our recent FSHD Europe Members’ Meeting in Amsterdam brought together people from across Europe to reflect, connect and shape what comes next, for people living with FSHD and the organisations that support them. This short video captures moments of exchange, strategy and community: from big‑picture conversations on advocacy, access and research, to informal moments of learning, curiosity and connection. 💬🤝 What stayed with us most? The energy, commitment and sense of moving forward. Together. 💙 ▶️ Watch the video to enjoy a snapshot of these three days. Would you like to support us and engage? Here’s how you can: 👉 Like, comment or repost to help raise awareness about FSHD 👉 Follow FSHD Europe to stay connected with our work 👉 Tag a colleague or organisation working in rare diseases or neuromuscular diseases 👉 Support our work by donating or partnering with us https://lnkd.in/ebegFrhn #FSHD #RareDisease #PatientAdvocacy #Neuromuscular #PatientVoice #Collaboration #Community #FSHDEurope 🔵🟠 Muscular Dystrophy Ireland AFM-Téléthon AMIS FSH FSHD SPAIN Vlaanderen vzw Spierziekten Nederland Sheila Hawkins Alan Breathnach Michaël Laurac Esmee Tournaij Carina Verdonck Caroline Elmstedt Héctor Ricardo Gerpe Andrew Graham Baziel van Engelen Julie Dumonceaux Alexandre Méjat Nicol Voermans Robert Matthezing Stefan Bos Kees van der Graaf

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