Post by Andre Correia
Digital Transformation Leader | Rare Diseases Patient Advocate | Guest Lecturer
๐๐ก๐๐ญ ๐ฐ๐จ๐ฎ๐ฅ๐ ๐๐๐ ๐๐จ ๐ข๐ ๐ฒ๐จ๐ฎ๐ซ ๐๐ก๐ข๐ฅ๐ ๐ฐ๐๐ฌ ๐๐ข๐๐ ๐ง๐จ๐ฌ๐๐ ๐ฐ๐ข๐ญ๐ก ๐ ๐๐ข๐ฌ๐๐๐ฌ๐ ๐ง๐จ ๐จ๐ง๐ ๐ฐ๐๐ฌ ๐ซ๐๐ฌ๐๐๐ซ๐๐ก๐ข๐ง๐ ? No treatments. No answers. No time. That was Pat Furlongโs reality. But instead of giving in, she stepped up and became a global force for change in rare diseases. In this weekโs "Rare Mind Talks" Podcast, Pat shares how she transformed deep grief into unstoppable leadership. ๐๐ฟ๐ผ๐บ ๐๐ฑ๐๐ฒ๐ฟ๐๐ถ๐๐ ๐๐ผ ๐ฃ๐ผ๐๐ฒ๐ฟ๐ณ๐๐น ๐๐น๐ผ๐ฏ๐ฎ๐น ๐๐ฒ๐ฎ๐ฑ๐ฒ๐ฟ๐๐ต๐ถ๐ฝ. She built Parent Project Muscular Dystrophy (PPMD), now one of the most impactful advocacy organisations in the world. ๐ Her story made me stop and think about: ๐ค How do we turn pain into purpose?ย ๐ค And who do we become when everything changes? Drop a comment ๐ Iโd love to hear your story. Listen to the full conversation at: ๐ https://lnkd.in/dvSuZ43T Also available on podcast platforms such as Spotify, Apple Podcasts, Google Podcasts, and many others. Isabel Soares, Luis Fatela, Cรฉlia Azevedo Soares MD PhD, Ricardo Camossa, J. Michael Graglia, Effie Parks, Danielle Molinari Andrade, Isabelle Vacher, Jyothi Sharma, Ana Pataki MSc, Isa Tudorache, Annie Kennedy, Paulo Gonรงalves, Ana Rita Moreira, Luis Miguel Oliveira #TheRareMind #RareMindTalks #Leadership #RareDiseases #AI #Data #Education #DigitalTransformation #Podcast #PatientAdvocacy