Post by Andre Correia

Digital Transformation Leader | Rare Diseases Patient Advocate | Guest Lecturer

๐–๐ก๐š๐ญ ๐ฐ๐จ๐ฎ๐ฅ๐ ๐˜๐Ž๐” ๐๐จ ๐ข๐Ÿ ๐ฒ๐จ๐ฎ๐ซ ๐œ๐ก๐ข๐ฅ๐ ๐ฐ๐š๐ฌ ๐๐ข๐š๐ ๐ง๐จ๐ฌ๐ž๐ ๐ฐ๐ข๐ญ๐ก ๐š ๐๐ข๐ฌ๐ž๐š๐ฌ๐ž ๐ง๐จ ๐จ๐ง๐ž ๐ฐ๐š๐ฌ ๐ซ๐ž๐ฌ๐ž๐š๐ซ๐œ๐ก๐ข๐ง๐ ? No treatments. No answers. No time. That was Pat Furlongโ€™s reality. But instead of giving in, she stepped up and became a global force for change in rare diseases. In this weekโ€™s "Rare Mind Talks" Podcast, Pat shares how she transformed deep grief into unstoppable leadership. ๐—™๐—ฟ๐—ผ๐—บ ๐—”๐—ฑ๐˜ƒ๐—ฒ๐—ฟ๐˜€๐—ถ๐˜๐˜† ๐˜๐—ผ ๐—ฃ๐—ผ๐˜„๐—ฒ๐—ฟ๐—ณ๐˜‚๐—น ๐—š๐—น๐—ผ๐—ฏ๐—ฎ๐—น ๐—Ÿ๐—ฒ๐—ฎ๐—ฑ๐—ฒ๐—ฟ๐˜€๐—ต๐—ถ๐—ฝ. She built Parent Project Muscular Dystrophy (PPMD), now one of the most impactful advocacy organisations in the world. ๐ŸŒ Her story made me stop and think about: ๐Ÿค” How do we turn pain into purpose?ย  ๐Ÿค” And who do we become when everything changes? Drop a comment ๐Ÿ‘‡ Iโ€™d love to hear your story. Listen to the full conversation at: ๐Ÿ”— https://lnkd.in/dvSuZ43T Also available on podcast platforms such as Spotify, Apple Podcasts, Google Podcasts, and many others. Isabel Soares, Luis Fatela, Cรฉlia Azevedo Soares MD PhD, Ricardo Camossa, J. Michael Graglia, Effie Parks, Danielle Molinari Andrade, Isabelle Vacher, Jyothi Sharma, Ana Pataki MSc, Isa Tudorache, Annie Kennedy, Paulo Gonรงalves, Ana Rita Moreira, Luis Miguel Oliveira #TheRareMind #RareMindTalks #Leadership #RareDiseases #AI #Data #Education #DigitalTransformation #Podcast #PatientAdvocacy

Post content