Post by Alira Health

We are excited to announce the launch of the AXIS Registry, a new initiative designed to advance research and improve patient care in autoimmune neurological diseases, including myasthenia gravis. Alira Health, in partnership with the Autoimmune Neurology Alliance, designed this registry to bring together patients, clinicians, and researchers through a shared data platform to capture both patient-reported and clinical data over time. By integrating these perspectives, AXIS can generate deeper insight into disease heterogeneity, treatment patterns, and the real-world impact of emerging targeted therapies, supporting more informed decision-making across clinical care, research, and health care systems.   For researchers, the registry will provide access to high-quality, real-world data to inform study design and clinical understanding, while enabling more efficient patient identification and recruitment into prospective studies. For patients, it creates an opportunity to contribute directly to research, gain greater visibility into their condition, and access relevant research opportunities, including clinical trials.   Read the press release for more details: https://lnkd.in/e4232grF