United Kingdom
My career in advocacy, anti-stigma and policy influence began after graduating from university in summer 2016. Since then, I have endeavored to translate my own experience of living with Cystic Fibrosis and mental ill health into positive change for people in my national and global patient communities. My interest in human genomics and advocacy is driven by a curiosity and desire to understand not only my own illness, but a multitude of related issues. I have leveraged an appetite for knowledge and lived experience into a set of skills that I hope to use to benefit millions of people across the globe by acting as a conduit for flow of information between policy makers and policy beneficiaries.
A well respected leader in my field, I consult to the Life Sciences and Medical Communications industries to develop class leading and ambitious patient engagement solutions that are therapeutic area agnostic and genuinely innovative. Key focuses on Patient Experience Data and Digital/Health Literacy.
Serving on the Advisory Committee Board at CanReview — a pan-Canadian initiative supported by the Accelerating Clinical Trials (ACT) Consortium — is a rare opportunity to help reshape how research ethics are conducted at a national level. CanReview is transforming the clinical trial landscape in Canada by enabling a single, harmonized research ethics review process across multiple sites, eliminating duplication and accelerating study start-up timelines. At its core, this work is about more than efficiency — it’s about enabling better, faster, and more equitable research for patients. In my role, I focus on embedding patient-centered principles directly into the design and evolution of these processes. This means ensuring that streamlined systems don’t just move faster, but move smarter — with patient needs, perspectives, and outcomes guiding decision-making at every stage. Contributing to the development of a national research ethics infrastructure is both a privilege and a responsibility. It represents a meaningful step toward a future where high-quality research is not delayed by fragmentation, and where patients are not an afterthought, but a driving force. Grateful to be part of a collaboration that is setting a new benchmark for how clinical research can and should be done.
As Head of Community & Sponsor Relations for Europe at pRxEngage, I lead efforts to connect patients, advocacy groups, and life science sponsors in meaningful, ethical, and sustainable ways. My work focuses on building trusted relationships, shaping regional engagement strategies, and ensuring that patient voices are heard and valued in research and beyond. What I do: Build and strengthen networks with patient communities and advocacy organizations across Europe. Partner with sponsors to design and deliver patient-centered engagement strategies. Bridge the gap between patients and industry, ensuring collaboration is transparent, respectful, and impactful. Drive regional strategy, aligning sponsor priorities with local needs and cultural contexts. Why it matters: By fostering authentic collaboration, I help advance pRxEngage’s mission to transform how patients and sponsors work together—ensuring research and engagement efforts reflect real-world patient needs and create long-term impact.
I am particularly proud of my work with Mind. I have an intimate relationship with this organisation and being able to help guide the charity through a difficult economic landscape is a real privilege. Working with Mind has given me detailed knowledge of short and midterm tender and procurement processes.
The role of the patient expert is to participate in the discussions and answer the Appraisal Committee’s questions, relating to patients’ experience of the therapies under appraisal and the condition that they treat. They attend as individuals rather than representatives of their nominating organisation.