Copenhagen, Capital Region of Denmark, Denmark
I am a qualified Patient Expert with extensive experience in R&D, clinical trials, patient recruitment, education, empowerment, and advocacy. As a Key Opinion Leader (KOL) and Patient Thought Leader, I specialize in bringing the patient perspective into healthcare—across early discovery, clinical trial design, and throughout the commercialization and lifecycle phases. With a proven track record of designing and implementing patient engagement strategies, I build strong partnerships with patients and caregivers. My goal is to amplify patient voices, ensuring they are heard and valued in every aspect of healthcare development, leading to more patient-centric solutions. Career Highlights 🔹 International Patient Strategist Experienced in driving patient engagement for clinical trials, patient perspective contributions, lay term document reviews, grant evaluations, and advisory board membership. 🔹 Facilitator of Patient-Centered Activities Skilled in facilitating patient interviews, focus groups, advisory boards, and panel discussions to gather meaningful insights that shape healthcare solutions. 🔹 Certified Patient Recruiter Certified in NIH Protecting Human Research Participants, with expertise in ethical and effective patient recruitment for clinical research. 🔹 Patient Engagement Architect Design and facilitate patient engagement programs to foster collaboration between patients, researchers, and healthcare providers, enhancing clinical outcomes. 🔹 Patient Educator & Community Builder Passionate about educating patients and creating supportive communities to empower individuals in managing their health and wellness. 🔹 Public Speaker & Guest Lecturer Experienced speaker and guest lecturer at academic conferences and public/private organizations, advocating for patient inclusion in healthcare research and development. 🔹 Expertise in Multiple Disease Areas Proficient in numerous disease areas, including autoimmune diseases, cancer, chronic illnesses, lupus, arthritis, Hashimoto’s, eczema, anti-phospholipid syndrome, fibroids, heart, liver and kidney health, lung disease, rare diseases, scleroderma, tinnitus, hearing loss, and psoriasis. 🔹 Research Specialist & Participant Actively contribute to research, offering unique insights as a patient and participant, helping to improve healthcare solutions and patient outcomes. 🔹 Chair and fellow, EUPATI Certified in EUPATI Patient Expert Medicines Research & Development Process, advocating for the integration of patient perspectives in all phases of healthcare product development.
The First Europe-Based Global Patient Collaborative – Your Trusted Partner in Patient Engagement & Co-Creation. We empower pharma, biotech, life sciences professionals and digital health entrepreneurs to seamlessly integrate patient insights into every stage of research and development (R&D)—from early discovery to commercialization strategy and beyond. Maximize Patient Engagement | Accelerate R&D Success | Enhance Market Access For Industry Professionals: Gain direct access to patients and caregivers worldwide to co-create solutions that align with real-world needs. We provide: ✅ Global Reach: Engage with patients across 100+ countries and 200+ disease areas ✅ Strategic Integration: Implement patient-centric R&D frameworks for better clinical outcomes ✅ End-to-End Support: From patient recruitment and strategy development to methodology and facilitation For Patients: Your voice matters! Get involved where your insights drive the biggest impact and be compensated for your knowledge in your disease area and country. Together, we transform research into real-world impact. Sign up to make an impact. #PatientEngagement #R&D #Biopharma #ClinicalResearch #PatientCentricity #DrugDevelopment #MedicalInnovation #CoCreation
Charlotta serves as a Lay Summary Reviewer for Future Science Group (Taylor and Francis), where she reviews patient-facing lay summaries across a broad range of disease areas on a global scale. In this role, Charlotta supports the communication of scientific and medical research by ensuring that complex research findings are translated into clear, accurate, and accessible language for non-specialist audiences, particularly patients, caregivers and the public. Key Responsibilities & Contributions ✅ Review lay summaries of peer-reviewed research articles across multiple therapeutic areas and disease domains ✅ Ensure scientific accuracy while improving clarity, readability, and accessibility for patient and lay audiences ✅ Provide patient perspective on language, framing, and communication of complex medical concepts ✅ Identify areas where content may be unclear, overly technical, or lacking patient relevance ✅ Support authors and editorial teams in improving communication materials and identifying appropriate visuals and infographics. ✅ Contribute to global efforts to strengthen patient engagement and transparency in scientific publishing ✅ Promote consistent use of plain language principles across diverse disease areas and journals Improving research outcomes communication one lay summary at a time #research #r&d #researchandevelopment #peerreview #laysummary #communication #patientengagement
Empowering EIT Health Grant Winners, MedTech Innovators & Life Science Entrepreneurs We support EIT Health grant recipients, collaborators, MedTech companies, startups, entrepreneurs and public and private professionals in optimizing patient engagement, strategy, and R&D success across the healthcare ecosystem. Expert Support for: ✅ Patient-Centric Strategy & Engagement – Align innovations with real-world patient needs ✅ Method Development & Digital Health – Implement cutting-edge patient engagement models ✅ Clinical Trial Design & Patient-Facing Materials – Enhance trial efficiency & accessibility ✅ Training & Education – Upskill teams with expert-led patient engagement programs EIT Health Grants & Project Evaluation We provide remote grant evaluations and serve as hearing judges, ensuring funding is awarded to high-impact, patient-driven innovations. Shaping the Future of Patient-Centric Healthcare – Let’s Connect! #PatientEngagement #MedTech #DigitalHealth #ClinicalTrials #HealthInnovation #EITHealth #LifeSciences #Biopharma #HealthcareStartups
Chairwoman, EUPATI Denmark | Advancing Patient-Led Health Innovation As Chairwoman of the Executive Board at EUPATI Denmark, I lead a patient-driven organization that unites patients, regulatory authorities, academia, and the pharmaceutical industry to transform health innovation in Denmark. Empowering Patients as Partners in R&D & Clinical Development We advocate for meaningful patient involvement across the entire medicine development lifecycle—not just in clinical trials but from early R&D to market access and beyond. Building Patient Expertise Through Education & Training ✅ Increasing patient capacity & capability to actively contribute to research & innovation ✅ Enhancing patient engagement in decision-making at every stage of drug development ✅ Providing accessible, reliable, and patient-friendly information to empower the public A Future Where Patients Shape the Medicines of Tomorrow – Learn more: www.eupati.eu/denmark #PatientEngagement #R&D #HealthInnovation #ClinicalTrials #EUPATI #PatientAdvocacy #MedicineDevelopment #Pharma #LifeSciences
Lupus Friends & Family Foundation – Empowering Patients, Driving Change Founded by Charlotta Norgaard, Lupus Friends & Family was created to restore hope, motivation, and resilience for those battling lupus and chronic illness. With deep expertise in the healthcare industry, Charlotta equips patients with the knowledge, mindset, and tools to take control of their health and be heard. Global Support, Advocacy & Awareness Through support groups, webcasts, patient events, and advocacy initiatives, we foster a world where chronic illness warriors find love, support, and essential resources to lead fulfilling lives. Leading the Charge in Patient Advocacy & Research ✅ Amplifying the Patient Voice in clinical development, policy change & R&D ✅ Influencing Legislation & Government Funding to improve lupus care & research ✅ Partnering with Industry, Academia & Patient Organizations for maximum impact ✅ Driving Patient Engagement in Research & Clinical Trials across all diseases & regions Our Mission & Reach: -Raising global awareness of lupus & chronic illness -Securing strategic partnerships across government, academia & industry -Training & sourcing patients for meaningful engagement in R&D -Securing sponsorships & funding to expand patient resources & opportunities -501(c)(3) Nonprofit | Tax-Deductible Donations & Sponsorships Welcome Join Us in Making a Difference! #LupusAwareness #ChronicIllness #PatientAdvocacy #ClinicalResearch #PatientEngagement #HealthcareInnovation #R&D #AutoimmuneResearch Facebook: https://www.facebook.com/LupusFriendsAndFamilyFoundationInc/?fref=ts Global support group: https://www.facebook.com/groups/700423876718413/
Patient Advocate | Speaker | Research & Development Advisor I amplify the patient voice in healthcare, clinical research, and innovation, ensuring that patients’ needs, perspectives, and experiences are integrated into decision-making processes. Expertise in: ✅ Patient Advocacy & Representation – Speaking on behalf of patients in healthcare initiatives, advisory boards, roundtables, and surveys ✅ R&D & Product Development – Providing critical feedback on new treatments, medical devices, mobile health solutions, and study protocols ✅ Clinical Research & Strategy – Enhancing study feasibility, patient recruitment, informed consent design, and trial accessibility ✅ Healthcare Communication & Education – Strengthening patient-doctor relationships to improve outcomes and minimize gaps in care Speaker & Lecturer at: -Hospitals, Patient Groups & Conferences – Driving innovation in patient engagement & care models -Universities & Pharmacy Schools – Training the next generation of healthcare professionals -CROs, mHealth Companies & Government Agencies – Ensuring patient-centric research and policies Transforming Healthcare Through Patient-Centric Collaboration – Let’s Connect! #PatientAdvocacy #ClinicalResearch #PatientEngagement #R&D #HealthcareInnovation #MedicalDevices #DigitalHealth #ClinicalTrials #HealthPolicy