Heidi Beate Bentzen

Researcher at the University of Oslo and CEO of Governance Advisory AS

Oslo, Oslo, Norway

About

Heidi Beate Bentzen focuses on the cross-field between law and medicine. Her main focus is data protection law, in particular sharing and re-use of health and genetic data, and biolaw, in particular the legal regulation of precision medicine and emerging technologies.

Experience

  • University of Oslo (13 yrs 7 mos)
    • Researcher
      Apr 2022 - Present · 4 yrs 4 mos

      Researcher at the Centre for Medical Ethics, Faculty of Medicine, conducting research or teaching and supervision in four EU funded projects: 1) Supervised morphogenesis in gastruloids (SUMO) 2) Embedding a comprehensive ethical dimension to organoid-based research and related technologies (HYBRIDA) 3) Responsible Open Science in Europe (ROSiE) 4) Training for Organoids modelling Physiology and Pathology in the human gastrointestinal tract (TOP-GUT) Also contributing with supervision to a Research Council of Norway funded project: 5) Responsible Explainable Machine Learning for Sleep-related Respiratory Disorders (RESPIRE)

    • Teaching
      Sep 2018 - Present · 7 yrs 11 mos

      Data protection law at PhD level: HES9365 Register-based epidemiology CCBIO906 Cancer Genomics (University of Bergen) Data protection law and research ethics in medical school: MED5095 Knowledge management and project assignment COURSERA Personalised medicine (University of Copenhagen for medical schools in the Nordics) Research ethics and data protection law in the master's programs Interdisciplinary Health Research and International Community Health: HELSEF4510 Medical and Health Related Research Ethics Bioethics and biolaw for bachelor students in Biotechnology (OsloMet) Data protection law and ethics related to artificial intelligence for continuing education: ITEVU4120 Verdien av data i beslutningsprosesser [The value of data in decision-making processes] Bioethics and biolaw for SIDCER professionals: The law and ethics of organoid research Data protection law ROSiE MOOC: Open science

    • Researcher
      Apr 2018 - Apr 2022 · 4 yrs 1 mo

      Researcher at The Norwegian Research Center for Computers and Law, Faculty of Law, University of Oslo on the NordForsk funded project «Governance of Health Data in Cyberspace». The interdisciplinary project aims to develop recommendations for resilient governance mechanisms for health cyberspace that can meet social expectations regarding the security and privacy of health data, while enabling broad use of health data to benefit society. The project is led by The University of Oxford, and in addition to The University of Oslo, Uppsala University and The University of Iceland are partners.

  • Academic Affiliate at University of Oxford
    May 2019 - Present · 7 yrs 3 mos

    HeLEX Centre for Health, Law and Emerging Technologies at The Faculty of Law, University of Oxford

  • Legal Advisor at Cancer Registry of Norway (Kreftregisteret)
    Nov 2020 - Present · 5 yrs 9 mos

    Provision of legal assistance in relation to international data transfers. Also conducting research on three projects: 1) Biobank Norway 4 - a national biobank research infrastructure. Funded by the Research Council of Norway (Jan 2023-) 2) miRNA as biomarkers in early detection and personalized treatment in ovarian cancer (miRPOC). Funded by ERA PerMed (May 2023-) 3) Implementation of cancer screening programs (EUCanScreen). EU funded Joint Action (June 2024-)

  • CEO at Governance Advisory AS
    Oct 2020 - Present · 5 yrs 10 mos

  • European Commission (6 yrs 7 mos)
    • Ethics Expert
      Jan 2020 - Present · 6 yrs 7 mos

      Ethics Expert conducting ethics screenings, assessments, checks, and reviews for the European Commission of EU funded research projects. Attended Horizon 2020 ethics appraisal scheme training at the European Commission.

    • Scientific Evaluator
      May 2022 - Present · 4 yrs 3 mos

      Scientific evaluation of research proposals.