Danny van Leeuwen

Patient/Caregiver Activist, Best Health Journalist, PCORI Board member, Tech Tinkerer, Musician

Greater Boston

About

A two-legged, cisgender, old, white man of privilege living in a food oasis with multiple sclerosis committed to health equity and learning and sharing what works for best health. Serving people who help people by leveraging privilege and experience as a nurse, caregiver, data geek, and leader to open seats at the table of healthcare governance, design, operations, and research for under-represented and under-served communities. Speaker, podcaster (https://linktr.ee/healthhats), technical expert, capacity builder, musician, and Opa.

Experience

  • Health Hats (14 yrs 1 mo)
    • Patient/Caregiver Activist, Podcaster, Person
      Jul 2012 - Present · 14 yrs 1 mo

      Two-legged, cisgender, old, white man of privilege living in a food oasis and living with multiple sclerosis, who can afford many hats. A patient-caregiver activist, nurse, care partner, informaticist, and leader leveraging his privilege to open doors, greet, and support other activists to directly participate in the governance, design, operations, and learning across healthcare. Seeks to listen, learn, and share what works in the journey toward best health for under-served and under-represented communities. Passionate about inclusion and health equity, partnerships between all people at the point of care making informed health decisions together, and sustainable pain management. Speaker, writer, blogger, podcaster, technical expert, user tester, research and start-up advisor, coach, mentor, musician, and Opa. Knows a little bit about a lot of health care and a lot about not much. www.health-hats.com

    • Content Creator
      Jul 2012 - Present · 14 yrs 1 mo

  • Board of Governors at Patient-Centered Outcomes Research Institute (PCORI)
    Sep 2020 - Present · 5 yrs 11 mos

  • Consultant at Wellesley Partners, LTD
    Oct 2012 - Jun 2017 · 4 yrs 9 mos

    Danny specializes in guiding complex projects to completion especially those maximizing the experience and empowerment of people at the center of care (patients, caregivers, clinicians, direct care, and support staff).He uses his broad experience and skills in culture change; listening to the voice of patients and families in governance, design, operations and research; performance improvement; operations work flow; networking and collaboration; information systems and mobile health; research and data analysis; and health literacy.

  • Vice President Quality Management at Advocates, Inc.
    Apr 2013 - Oct 2015 · 2 yrs 7 mos

    Performance Improvement, Regulatory Compliance, Clinical Outcomes, Clinical Informatics, Patient and Staff Experience Advocates' mission is to help people achieve their hopes and dreams within the fabric of their communities. We partner with people with disabilities, elders, and those with other challenges to overcome personal obstacles and societal barriers so that they can obtain and keep homes, engage in work and other meaningful activities, and sustain satisfying relationships. We work to inspire communities to create opportunities for contribution and participation by all.

  • Senior Project Manager Patient Family Experience at Boston Children's Hospital
    Mar 2008 - Sep 2012 · 4 yrs 7 mos

    Reported to Chief Administrative Officer Project Manager for Patient and Family Experience / Access Facilitating Autism Friendly Hospital Managing interdisciplinary governance of primary care and specialty clinics Member Meaningful Use team